Erin is just 19 years of age was diagnosed at the age of 14

March 9, 2016

I really thought that I had an extremely low pain tolerance, and that I unfortunately had painful periods. I missed 10 weeks of my HSC year at school, which made graduating high school with any academic achievement nearly impossible. Usually I am bed ridden for 3 to 4 days a month with pain.

 

When I was diagnosed and saw a specialist, it really didn’t make me feel a whole lot better. My endometriosis related symptoms included nausea, vomiting, migraines, numb feet and hands, shakes/sweats, dehydration, in and out of consciousness.

 

I had surgery at 17 and to be honest it is hard to explain the concerns I had about surgery, partly due to having a fear of hospitals. But to be worried about the possibility of infertility at 17 made me so anxious. I had a reaction to the anaesthesia and it took me 8 hours to regain consciousness. Turns out I had a large amount of endometriosis cells on my lower back.

 

If I’m being honest its actually nice to tell people who give me that "Oh she's sick again” look, that I have a severe disease and that it's not just some small issue. If I could say one thing it would be ‘Don’t judge what you don’t understand. No I'm not just sick again - I have a disease’.

 

Doctors should give people all the options for them to decide regardless of age, it should be MY choice, its MY disease. Even at 17 I made the decision to have surgery and I’m happy to report I’m managing my periods and pain well.

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